Saturday, December 8, 2012

Hello friends and family!  Not sure if anyone is still following (It's been nearly a year since we posted that crawling video!?) but we are feeling inspired to write an update.

As many of you know, we moved north to Lyons, CO over the summer.  Ben took a job as music teacher for Lyons Elementary School here.  It is a beautiful and friendly place and we feel lucky to be here.

Lumin is 20 months old now.  She is a talking, running, singing, shouting ball of energy.  This evening we went for a night walk to see some Christmas lights and Lumin decided that she needed to "wear wings!" (her fairy costume) so she wandered around the neighborhood in about 4 layers of winter clothes, a tutu, and wings.  She is full of kisses, loves to sing, and can already tantrum like a 2-year-old :-P  She's also recently become obsessed with bears, especially polar bears.

Her health continues to be great.  Still no signs of any lasting affect from her brain injury.  We found a doctor that we like up here and she was totally amazed to learn Lumin's history.  Lu still has the umbilical hernia that she was born with, but we don't need to do anything about that unless it's still there when she's 3 or 4.

Life is so normal and healthy these days, that I no longer think about her injury every day.  How awesome is that?!  I remember a time shortly after Lumin was born-- I was sitting and thinking, trying to wrap my head around everything that had happened in such a short time.  And I was wrestling with the idea that "everything happens for a reason."  At the time it seemed too terrible to think of any reasons that she would have had to suffer so much, of there being good in it.  I still don't know the reasons.  It's all very mysterious to me.  But one wonderful thing that has come out of the experience for me is gratitude.  So much gratitude.  Instead of thinking about her injury every day, I now think about how awesome it is that she is here with us, that we get to know this little person.  Having such immediate, frequent access to my gratitude is a wonderful gift and it comes from very nearly losing her.  I think it helps me be a better parent than I would have been otherwise.  And I also feel immense gratitude for the people who sent prayers, love, food, and money to keep us going during those times.  Thank you.  We still think of you.  Receiving all of that love and support has changed us forever.  I'm hoping to figure out a way to fundraise to support brain cooling therapy or families of brain-injured babies..... Perhaps to help get a cooling cap to a hospital that doesn't have one?  If anyone has any ideas or suggestions on how to do this type of fundraising, let me know!

Wishing you all love, fun, and peace this holiday season....

Monica (Ben & Lumin)